Spinal Muscular Atrophy: Screening
Commons · Question 9136 · Tabled 11 Jun 2026 · Department of Health and Social Care · Official record
Answered 19 Jun 2026
Question
Asked by Ben Obese-Jecty
To ask the Secretary of State for Health and Social Care, what is the composition of the control group on the In-Service Evaluation in relation to spinal muscular atrophy screening.
Answer
Answered by Preet Kaur Gill, 19 Jun 2026
The Department invests in research through the National Institute for Health and Care Research (NIHR). The NIHR is funding a £4.1 million study on in-service evaluation of newborn screening (NBS) for spinal muscular atrophy (SMA), led by Professor Laurent...