Written questions

Autoimmune Diseases: Rare Diseases

2026-06-08 · Department of Health and Social Care · HL777 · Official question

Question

To ask His Majesty's Government what steps they are taking to improve care coordination for patients with rare autoimmune rheumatic diseases, including the allocation of a named care coordinator, in light of the publication of the NICE Quality Standard fo

Answer

The Government is committed to improving the lives of those living with rare diseases under the UK Rare Diseases Framework. We published the fifth annual England action plan in February 2026, where we report on the steps we have taken to advance the prior...