Written questions

Autoimmune Diseases: Rare Diseases

2026-06-08 · Department of Health and Social Care · HL779 · Official question

Question

To ask His Majesty's Government what data they collect on the prevalence, incidence and patient experience of those diagnosed with rare autoimmune rheumatic diseases; and what Government body will oversee this data following the abolition of NHS England.

Answer

The Government is committed to improving the lives of those living with rare diseases under the UK Rare Diseases Framework. We published the fifth annual England action plan in February 2026, where we report on the steps we have taken to advance the prior...