Written questions

Metachromatic Leukodystrophy

Commons · Question 5800 · Tabled 1 Jun 2026 · Department of Health and Social Care · Official record

Answered 1 Jul 2026

Question

Asked by Gregory Stafford

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of adding metachromatic leukodystrophy (MLD) to the NHS newborn blood spot screening programme.

Answer

Answered by Sharon Hodgson, 1 Jul 2026

Members of the UK National Screening Committee (UK NSC) have agreed that metachromatic leukodystrophy (MLD) would be a good candidate for the inclusion in a multi-condition in-service evaluation (ISE) within the United Kingdom’s newborn blood spot (NBS) s...