Epidermolysis Bullosa: Children
Commons · Question 1318 · Tabled 14 May 2026 · Department of Health and Social Care · Official record
Answered 26 May 2026
Question
Asked by Helen Morgan
To ask the Secretary of State for Health and Social Care, what assessment he has made of the financial and logistical burdens on families of children with severe forms of epidermolysis bullosa who are required to travel long distances to EB Healthcare Cen
Answer
Answered by Sharon Hodgson, 26 May 2026
NHS England recognises that some children with severe forms of epidermolysis bullosa (EB) and their families may need to travel significant distances to access highly specialised care provided through nationally commissioned EB centres. The rarity and com...