Written questions

Ehlers-Danlos Syndrome

2026-05-12 · Department of Health and Social Care · 805 · Official question

Shockat Adam

Question

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve training and awareness among healthcare professionals of complex multi system conditions such as hEDS and associated comorbidities.

Answer

In England, the organisation and delivery of multidisciplinary care for patients with hypermobile Ehlers-Danlos syndromes (hEDS) and associated co-morbidities is a matter for local National Health Service systems. Integrated care boards are responsible fo...