Ehlers-Danlos Syndrome: Health Services
2026-05-12 · Department of Health and Social Care · 797 · Official question
Question
To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of NHS care pathways for patients with hypermobile Ehlers-Danlos Syndrome and associated co-morbidities.
Answer
In England, the organisation and delivery of multidisciplinary care for patients with hypermobile Ehlers-Danlos syndromes (hEDS) and associated co-morbidities is a matter for local National Health Service systems. Integrated care boards are responsible fo...