Craniocervical Instability
2026-05-12 · Department of Health and Social Care · 363 · Official question
Question
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that patients with suspected craniocervical instability in the context of hypermobile Ehlers-Danlos syndrome are not (a) misdiagnosed and (b) inappropriately manag
Answer
The Government recognises the challenges faced by patients with hypermobile Ehlers‑Danlos syndromes (hEDS) and associated conditions, including suspected craniocervical instability (CCI), which can be complex to diagnose and manage.In England, decisions a...