Spinal Muscular Atrophy: Babies
Commons · Question 125922 · Tabled 10 Apr 2026 · Department of Health and Social Care · Official record
Answered 20 Apr 2026
Question
Asked by Al Pinkerton
To ask the Secretary of State for Health and Social Care, whether his Department plans to review the available (a) clinical and (b) cost-effectiveness evidence on including spinal muscular atrophy in the newborn screening programme.
Answer
Answered by Sharon Hodgson, 20 Apr 2026
The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...