Rare Diseases: Children
Commons · Question 119830 · Tabled 11 Mar 2026 · Department of Health and Social Care · Official record
Answered 23 Mar 2026
Question
Asked by Gregory Campbell
To ask the Secretary of State for Health and Social Care, how many children were born with rare diseases as identified by the National Congenital Anomaly and Rare Disease Registration Service in each of the last ten years.
Answer
Answered by Sharon Hodgson, 23 Mar 2026
The National Congenital Condition and Rare Disease Registration Service (NCARDRS), part of the National Disease Registration Service (NDRS), was established in 2015 and collects data on individuals with congenital and rare conditions in England. There are...