Written questions

Hereditary Diseases: Babies

Commons · Question 118632 · Tabled 6 Mar 2026 · Department of Health and Social Care · Official record

Answered 16 Mar 2026

Question

Asked by Freddie van Mierlo

To ask the Secretary of State for Health and Social Care, whether he has assessed the potential merits of introducing measures to accelerate the roll-out of new newborn screening programmes for genetic diseases.

Answer

Answered by Sharon Hodgson, 16 Mar 2026

NHS England is currently planning a large-scale in-service evaluation (ISE) of screening for spinal muscular atrophy (SMA), which is a genetic condition, in newborn screening services to start in January 2027. Over 400,000 babies would be offered screenin...