Spinal Muscular Atrophy: Babies
Commons · Question 117066 · Tabled 2 Mar 2026 · Department of Health and Social Care · Official record
Answered 16 Mar 2026
Question
Asked by Freddie van Mierlo
To ask the Secretary of State for Health and Social Care, what steps are being taken to ensure that screening as part of the in-service evaluation of newborn screening of spinal muscular atrophy is commenced.
Answer
Answered by Sharon Hodgson, 16 Mar 2026
The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...