Written questions

Spinal Muscular Atrophy: Children

Commons · Question 103761 · Tabled 7 Jan 2026 · Department of Health and Social Care · Official record

Answered 23 Jan 2026

Question

Asked by Jim Shannon

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support parents whose children have been diagnosed with spinal muscular atrophy.

Answer

Answered by Ashley Dalton, 23 Jan 2026

Planning for a large-scale trial across the National Health Service is underway, where hundreds of thousands of babies will be screened for spinal muscular atrophy (SMA) from next year to help build the evidence base needed to support a national screening...