Ehlers-Danlos Syndrome: Waiting Lists
Commons · Question 98669 · Tabled 9 Dec 2025 · Department of Health and Social Care · Official record
Answered 7 Jan 2026
Question
Asked by Gregory Stafford
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to reduce the time taken for (a) referrals and (b) assessments for Ehlers-Danlos syndrome.
Answer
Answered by Ashley Dalton, 7 Jan 2026
The Department recognises that Ehlers-Danlos syndromes (EDS) are complex, multi-systemic conditions that can be challenging to diagnose. While no formal assessment of average diagnosis times has been made, the Department is aware that many patients experi...