Ehlers-Danlos Syndrome: Diagnosis
Commons · Question 98667 · Tabled 9 Dec 2025 · Department of Health and Social Care · Official record
Answered 7 Jan 2026
Question
Asked by Gregory Stafford
To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of NHS waiting times for the diagnosis of Ehlers-Danlos syndrome.
Answer
Answered by Ashley Dalton, 7 Jan 2026
The Department recognises that Ehlers-Danlos syndromes (EDS) are complex, multi-systemic conditions that can be challenging to diagnose. While no formal assessment of average diagnosis times has been made, the Department is aware that many patients experi...