Rare Diseases: Health Services
Commons · Question 93292 · Tabled 20 Nov 2025 · Department of Health and Social Care · Official record
Answered 25 Nov 2025
Question
Asked by Helen Morgan
To ask the Secretary of State for Health and Social Care, if he will publish a timeline for refreshing the UK Rare Diseases Framework.
Answer
Answered by Ashley Dalton, 25 Nov 2025
Patient voice is an underpinning theme of the UK Rare Diseases Framework, and we are committed to ensuring that the patient voice is a key driver of the action plans published under this framework. The UK Rare Diseases Framework was published following th...