Rare Diseases: Health Services
Commons · Question 86628 · Tabled 30 Oct 2025 · Department of Health and Social Care · Official record
Answered 26 Nov 2025
Question
Asked by Jim Shannon
To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of the potential merits of ensuring that rare autoimmune rheumatic disease patients have named care coordinators.
Answer
Answered by Ashley Dalton, 26 Nov 2025
We are aware there remains unmet need on coordination of care for people with rare diseases and work is underway to improve this.Integrated care boards (ICBs) are responsible for working with their local communities to understand the needs of the local po...