Rare Diseases
Commons · Question 78790 · Tabled 10 Oct 2025 · Department of Health and Social Care · Official record
Answered 20 Oct 2025
Question
Asked by Matt Vickers
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that (a) general practitioners and (b) hospital doctors receive training on (i) Ehlers Danlos Syndrome and (ii) other rare conditions.
Answer
Answered by Ashley Dalton, 20 Oct 2025
NHS England commissions a national diagnostic service for complex and rare types of Ehlers-Danlos syndrome (EDS) via two specialist centres. This service supports patients with a suspected or confirmed diagnoses of rare types like classical, vascular, or ...