Ehlers-Danlos Syndrome: Young People
Commons · Question 78786 · Tabled 10 Oct 2025 · Department of Health and Social Care · Official record
Answered 4 Nov 2025
Question
Asked by Matt Vickers
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the availability of transition support for young people with Ehlers Danlos Syndrome who are moving from paediatric to adult NHS services.
Answer
Answered by Ashley Dalton, 4 Nov 2025
Integrated care boards (ICBs) have a statutory responsibility to commission services which meet the needs of their local populations. It is the responsibility of ICBs, working with clinicians, service users, and patient groups, to develop services and car...