Written questions

Cerliponase Alfa

Commons · Question 77949 · Tabled 16 Sep 2025 · Department of Health and Social Care · Official record

Answered 14 Oct 2025

Question

Asked by Freddie van Mierlo

To ask the Secretary of State for Health and Social Care, what discussions he has had with the National Institute for Health and Care Excellence on securing long term access to cerliponase alfa.

Answer

Answered by Zubir Ahmed, 14 Oct 2025

Officials in the Department have had a number of discussions with colleagues in the National Institute for Health and Care Excellence (NICE) about the ongoing appraisal of cerliponase alfa (Brineura) for the treatment of neuronal ceroid lipofuscinosis typ...