Tofersen
Commons · Question 77281 · Tabled 15 Sep 2025 · Department of Health and Social Care · Official record
Answered 13 Oct 2025
Question
Asked by Manuela Perteghella
To ask the Secretary of State for Health and Social Care, what discussions he has had with NHS England on ensuring adequate numbers of NHS employees are available to administer Tofersen.
Answer
Answered by Karin Smyth, 13 Oct 2025
I have had no such discussions. The National Institute for Health and Care Excellence (NICE) has selected tofersen for treating amyotrophic lateral sclerosis caused by SOD1 gene mutations as a topic for guidance development through its Highly Specialised ...