Babies: Rare Diseases
Commons · Question 68762 · Tabled 17 Jul 2025 · Department of Health and Social Care · Official record
Answered 25 Jul 2025
Question
Asked by Jim Shannon
To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of babies born with rare diseases in the first half of (a) 2025 and (b) 2024.
Answer
Answered by Ashley Dalton, 25 Jul 2025
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases. Digital data and technology are an underpinning theme of the UK Rare Diseases Framework. The National Disease Registration...