Spinal Muscular Atrophy: Babies
Commons · Question 48033 · Tabled 24 Apr 2025 · Department of Health and Social Care · Official record
Answered 29 Apr 2025
Question
Asked by Freddie van Mierlo
To ask the Secretary of State for Health and Social Care, what recent discussions he has had with the UK National Screening Committee on timelines for implementing in-service evaluation of newborn screening for spinal muscular atrophy.
Answer
Answered by Ashley Dalton, 29 Apr 2025
The UK National Screening Committee (UK NSC) is working with the spinal muscular atrophy (SMA) partnership board to scope out the potential shape of the in-service evaluation into SMA. The partnership board includes clinicians, academics, patient represen...