Written questions

Givinostat

Commons · Question 38493 · Tabled 14 Mar 2025 · Department of Health and Social Care · Official record

Answered 26 Mar 2025

Question

Asked by Neil Shastri-Hurst

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of delays in accessing givinostat through the Early Access Programme on boys and young men living with Duchenne muscular dystrophy in the UK.

Answer

Answered by Karin Smyth, 26 Mar 2025

The Department understands the impact that Duchenne muscular dystrophy has on those living with it and their families, and the urgent need for new treatment options. The National Institute for Health and Care Excellence (NICE) recently published guidance ...