Muscular Dystrophy: Health Services
Commons · Question 20849 · Tabled 17 Dec 2024 · Department of Health and Social Care · Official record
Answered 23 Dec 2024
Question
Asked by John Milne
To ask the Secretary of State for Health and Social Care, if he will take steps to ensure that the early access programme for people with Duchennes is made available across all NHS trusts.
Answer
Answered by Karin Smyth, 23 Dec 2024
Access to the Early Access Programme (EAP) for givinostat must be through one of the 23 NorthStar Centres in the United Kingdom. However, participation in the EAP is decided at an individual National Health Service trust level, and a North Star Centre wil...