Written questions

Rare Diseases: Diagnosis

Commons · Question 18897 · Tabled 10 Dec 2024 · Department of Health and Social Care · Official record

Answered 16 Dec 2024

Question

Asked by Gregory Campbell

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential impact of the UK Rare Diseases Framework, published on 9 January 2021, on reducing the time it takes to diagnose rare diseases.

Answer

Answered by Andrew Gwynne, 16 Dec 2024

The Government is committed to improving the lives of those living with rare diseases. The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community, including helping patients get a final diagnosis fast...