Written questions

Eyesight: Rare Diseases

Commons · Question 18392 · Tabled 6 Dec 2024 · Department of Health and Social Care · Official record

Answered 12 Dec 2024

Question

Asked by Marsha De Cordova

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that patients living with rare inherited retinal diseases receive (a) timely and (b) equitable access to new treatments.

Answer

Answered by Andrew Gwynne, 12 Dec 2024

The Government is committed to improving the lives of those living with rare diseases, such as rare inherited retinal diseases. The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community, including im...