Congenital Disorder of Glycosylation
Commons · Question 680 · Tabled 18 Jul 2024 · Department of Health and Social Care · Official record
Answered 25 Jul 2024
Question
Asked by Daisy Cooper
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a national patient register for Congenital Disorders of Glycosylation.
Answer
Answered by Andrew Gwynne, 25 Jul 2024
No assessment has been made of the potential merits of establishing a national patient register for congenital disorders of glycosylation. There are no plans in England for a specific registry for this condition. Metabolic patients are included in the Nat...