Congenital Disorder of Glycosylation
Commons · Question 679 · Tabled 18 Jul 2024 · Department of Health and Social Care · Official record
Answered 25 Jul 2024
Question
Asked by Daisy Cooper
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of including a dedicated Congenital Disorders of Glycosylation section in the UK Strategy for Rare Diseases.
Answer
Answered by Andrew Gwynne, 25 Jul 2024
No assessment has been made of the potential merits of including a dedicated section on congenital disorders of glycosylation in the UK Rare Diseases Framework. The framework was published in 2021, and provides a national vision for how to improve the liv...