Lobular Breast Cancer: Moon Shot Project
House of Commons · Westminster Hall · 9 Jul 2026 · 38 speeches · Official Report
[Wera Hobhouse in the Chair ]
We have quite a lot of members of the public in the Gallery; it is lovely to have you. You have been through the experiences and are affected by the topic of the debate. However, as is convention, I encourage Members to speak into the Chamber and through me as Chair and not turn round to the Gallery. That is not to be impolite; it is a convention of this Chamber, so please understand that.
I beg to move, That this House has considered Government support for the Lobular Moon Shot Project. It is a pleasure to serve under your chairship, Mrs Hobhouse. MPs from across the House are here today to mark the anniversary of the death of my constituent Dr Susan Michaelis, founder of the Lobular Moon Shot Project. I thank the Backbench Business Committee for finding time at very short notice in the parliamentary schedule for this debate. Unfortunately, that short notice has prevented many MPs who would have liked to have spoken today from joining us. Unfortunately, that was a necessity. Today is a sad moment because Susan is no longer with us, but it is also a time to celebrate what she has achieved. Susan was a remarkable woman. She was warm but incredibly stoic. At no time was that clearer than on her last trip to Parliament in the summer of last year, oxygen tank in tow. Determined but evidently suffering, Susan stood for 22 minutes in a silent vigil outside No. 10 Downing Street with fellow campaigners and lobular ladies around her. We all understood that Susan was in her last days or weeks, so to watch her husband, campaigners and fellow lobular ladies rallying around her, literally supporting her, was a sight to behold. In her haste to deliver her petition to No. 10 that day, Susan had forgotten her ID. She was distraught. All that effort would be wasted, as the rules were clear: no ID, no entry. But that, of course, was not Susan’s way. Susan, with our support,...
I commend the hon. Gentleman for securing this debate. He has been very vocal on this subject matter and we all support him. I apologise to him, to you, Mrs Hobhouse, and to the ladies in the Public Gallery today, because I have an early flight home so I cannot be here to make a longer contribution to the debate. This debate is not just about the women the hon. Gentleman has referred to. Alongside Northern Ireland’s Health Minister, Mike Nesbitt, I have met women in Northern Ireland who have lobular cancer. Some of them will not have a long time in this world and I was very moved by what they told us. Does the hon. Gentleman feel that now is the time for the Minister and the Government to ensure that the small amount of money that is needed to help to alleviate the health issues for women with lobular breast cancer is made available, as well as the money that is needed for research? If that happens, the ladies who are here today and my constituents in Northern Ireland can get the help they need.
I thank the hon. Member for his contribution and I very much agree. I also note that the right hon. Member for Makerfield (Andy Burnham), who is potentially our next Prime Minister, comes from Manchester, has visited the clinic and is already familiar with the campaign, so I am hopeful. As I was saying, lobular breast cancer is the sixth most prevalent cancer in women. That puts it ahead of melanoma cancer, ovarian cancer, brain cancer, kidney cancer and pancreatic cancer combined. Incredibly, there is still no specific treatment. Breast cancer as a whole costs this country over £3 billion a year. It takes around 11,200 lives annually, or the lives of roughly 31 women a day. Many of these are lobular cases, yet lobular breast cancer receives none of the targeted treatment that drives down mortality for other forms of this disease. Every woman who is diagnosed with lobular breast cancer is given the same drugs, the same protocols and the same guidelines as someone with an entirely different cancer. That is because the basic biology of lobular has never been established. It is this gap that the Lobular Moon Shot Project exists to close. We need £20 million over five years, which is just £4 million a year to crack the biology of this disease. That is not speculative research; it is a certain outcome. Other researchers in the UK and around the world can then take things forward to find targeted treatments, because this is a world problem and the world can find the solutions. Of...
Order. I remind Members that they should bob if they wish to be called. I intend to call the Front Benchers at 3.58 pm. I am currently not imposing a time limit, but I suggest that Members keep their speeches to a maximum of eight minutes especially if they intervene on others.
It is a pleasure to serve under your chairmanship, Mrs Hobhouse. I thank my friend the hon. Member for Horsham (John Milne) for the initiative to lead this debate. Although she is not present in the debate, I also pay tribute to the hon. Member for Maidstone and Malling (Helen Grant), who is a great campaigner on this issue. That really demonstrates the cross-party support for the Lobular Moon Shot Project. I also pay tribute to one of my constituents, Katie Swinburne. She is a mother of three and a very popular local schoolteacher, and she has lobular breast cancer. I first became aware of Katie through Dehenna Davison, who was the MP for Bishop Auckland before me. She did fantastic work supporting Katie as her constituent at the time, and anybody who knew my predecessor knows that she was a formidable single-issue campaigner. When I was elected, Katie asked to see me, and I was delighted to pick up the baton and support my constituent. In fact, this Saturday she is organising a fair and a tabletop sale in her village of Hilton to raise funds for the Lobular Moon Shot Project. Through Katie, I was privileged to be introduced to Dr Susan Michaelis and her husband Tristan Loraine. Susan was visiting Katie in her home in County Durham. Through the Lobular Moon Shot Project, I have observed a real sisterhood and solidarity among those who are campaigning together. I have never been in the position of being told that I have terminal cancer, and I find it difficult to imagine,...
It is a pleasure to serve under your chairship, Mrs Hobhouse. I thank my hon. Friend the Member for Horsham (John Milne) for securing this important debate. I pay tribute to everyone who has campaigned tirelessly on this issue. When I met the Lobular Moon Shot Project team in April, their determination to improve outcomes for patients was unmistakeable. The debate is also an opportunity to remember Dr Susan Michaelis on the first anniversary of her passing. After being diagnosed with invasive lobular breast cancer in 2011, Susan devoted her final years to advancing research into this awful disease. In 2023, she founded the Lobular Moon Shot Project, and in December 2024, many colleagues and I spoke in a Westminster Hall debate to echo the project’s call for greater investment in lobular breast cancer research. I hope that the Minister this afternoon will be able to give us some idea of whether the Government listened to us all those months ago and whether they are listening today, because very little appears to have changed. Invasive lobular breast cancer is the second most common type of breast cancer, with between 7,500 and 8,000 people diagnosed every year in the UK. That is around 22 women every day. Despite accounting for around one in seven breast cancer diagnoses, this form of the disease remains under-researched with no specifically designed treatment. As a result, patients are often treated with therapies known to be less effective for lobular tumours, increasing...
It is a pleasure to serve under your chairship, Mrs Hobhouse. I thank the hon. Member for Horsham (John Milne) for securing this hugely important debate and for his powerful speech. Just a few weeks ago, I stood outside Downing Street alongside women living with invasive lobular breast cancer, their families and campaigners for the Lobular Moon Shot Project’s 22-minute silence. Those 22 minutes represented the 22 women who lose their lives to lobular breast cancer every day. It was a deeply moving experience. Standing in silence with women who are living with the disease alongside those who have lost loved ones brought home why today’s debate really matters. They were not asking for sympathy; they were asking to be seen. They were asking for better research, earlier diagnosis and better outcomes for women diagnosed in the future. Today, I want to share the story of my constituent, Trish. She has kindly given me permission to share her story because she hopes that by doing so, another woman may recognise the signs of lobular breast cancer sooner. Trish did everything that we ask women to do. Between 2014 and 2025, she attended six mammograms-six opportunities for cancer to be found, and six occasions when she believed that if something was wrong, it would be detected. But none of those mammograms picked up any signs. Like many women, Trish believed that cancer meant finding a lump. It was not a lump that led to her diagnosis; it was a shadow. After getting out of the shower...
My hon. Friend and other colleagues are making some very powerful points today. Is she going to come on to the important issue of medical training and education for doctors and other medical professionals, and the possible benefits of greater public awareness? The Department of Health and Social Care has historically done very important work leading on public awareness campaigns on illnesses and other issues in the health world. I hope that my hon. Friend will be able to highlight that as well.
Trish is a phenomenal campaigner-a lot like Susan-and she wants to work together to create an awareness campaign so that women understand that there is a difference between types of breast cancer. We are looking to establish a support group for women who have lobular breast cancer; that is in the works. On training, my hon. Friend is absolutely right: recognition and training forms part of research, understanding and detection-what it is and what causes it-but also what we need to do in the training required by people in the profession. I hope that the Government will continue working with researchers, clinicians and the Lobular Moon Shot Project to improve understanding of lobular breast cancer, support further research and ensure that women receive the earliest and most accurate diagnosis possible. Behind every statistic is someone like Trish, a woman who did everything that she was supposed to and who wants her experience to help somebody else. Next week, many of the women I stood with outside Downing Street will gather once again. My hope is that one day, they will no longer need to, and that through better research, greater awareness and earlier diagnosis, fewer women will hear the words that Trish heard. I hope that colleagues from across will continue to stand with those women until that becomes a reality.
Order. I encourage Members to speak into their microphones; it is quite difficult even for me to hear the debate, so it must be even more difficult for the people sitting in the Public Gallery. Please direct your remarks into the Chamber. I know there is a great temptation to direct it to our guests-we know they are here and we acknowledge them. I ask Members to speak up and speak into their microphones so that everybody can hear.
It is a real pleasure to serve under your chairship, Mrs Hobhouse. Thank you for the reminder. I very sincerely thank the hon. Member for Horsham (John Milne) for leading the effort to secure this debate and for his incredibly powerful speech. His recounting of Susan’s final visit to Parliament and the words of her husband, Tristan, was very moving indeed. He has done Susan, her loved ones and the thousands of supporters of her campaign proud today. I too welcome Tristan, Susan’s aunt Sally and her cousin Andrew to Parliament. Tristan kindly shared with us the briefing that he prepared for Members ahead of the debate. I know that many of us have drawn on it this afternoon and absorbed it. Susan had just one symptom: one tiny millimetre-long mark on her breast. She had no pain and no lump-none of the warning signs that many of us have been told to look out for. But that tiny mark concealed something a lot bigger: 7 cm of invasive lobular breast cancer. There is something profoundly cruel about that. The disease was growing silently while every reassuring scan understandably gave Susan and her family reason to believe that everything was fine. As we heard, incredibly, nine days before she passed away, Susan launched the scientific programme for the Lobular Moon Shot Project. Even while facing the unimaginable, she was looking beyond herself and fighting to ensure that other families might one day be spared what hers endured. I have no doubt that she would be immensely proud to...
It is a pleasure to serve under you in the Chair, Mrs Hobhouse. Like others, I thank the hon. Member for Horsham (John Milne) for introducing the debate and for how he did it. I want to make a prediction. I think the remaining speakers are going to say that they support this campaign and that they want to see a difference, and they will acknowledge the gap that needs to be filled. Our challenge is making that pledge and those words real. I have been in debates like this before-we all agree that something has to be done, yet we come back and speak about it again and again. Perhaps, if we all carry this campaign forward, this is the time to actually make it happen.
My hon. Friend just made an excellent point. We know the research questions that need to be answered. Does he agree that it should not be beyond UKRI to put out a specific call asking people, through a competitive peer review process, to answer those questions?
Exactly. In a former life, I was an academic. UKRI does at times engage with academics to fine-tune such questions. UKRI provides funding to universities, if needed, to bring the very best people to the UK either temporarily or on longer-term contracts to help to make a difference in the UK. Those things are perhaps all part of the solution. My hon. Friend is absolutely right. I am grateful for the opportunity to support this vital debate. It shines much-needed light on a disease that is still under-resourced, as has been said, and it honours the legacy of a woman who dedicated her final years to fighting it: the late Susan Michaelis. I was not fortunate enough to meet her but, as a result of the excellent introduction of the hon. Member for Horsham, I feel I know a little bit about her and her character. I am grateful for that introduction. Lobular breast cancer, despite being the second most common form of breast cancer, has historically received a mere 1% of breast cancer research funding. Susan refused to accept that disparity and the Lobular Moon Shot Project is her legacy-but it has to be more than a project. Hopefully, progress will be her real legacy. The project demands better treatment for every woman who receives a lobular breast cancer diagnosis. That is why all of us are in the Chamber for this debate. I recently received an incredibly powerful letter from a leading oncologist, Dr Michie. She is based in Edinburgh, treats patients in Scotland and works closely...
The hon. Member speaks about the value of research. Some 50 years ago this year, my cousin was diagnosed with breast cancer. She had three years. She left five children under the age of 10. Yesterday I met Lesley, who was diagnosed 20 years ago. Lesley is well. She is still receiving treatment, but that demonstrates the value of the advances that research can make. Does the hon. Member agree that it is absolutely vital that we invest in this area?
Absolutely. Yesterday I met with activists from Cancer Research UK just outside Parliament, before they came in. Cancer Research UK had around 100 activists there who had been touched by cancer, in all its shapes and forms, and although that big room was full of people who were full of energy, they were just a tiny part of the footprint of cancer and its impacts across the UK-absolutely tip-of-the-iceberg stuff. We have to acknowledge the emotional impact on individuals and families, but also the economic impact. We should never be ashamed of talking about that. There is also the economic impact of bringing the best research to the UK so that our laboratories, universities and hospitals can work on this issues. All that is a push in the right direction. The Government and the bio-sciences sector are notoriously slow-moving. We need to expedite work in this area; a dedicated funding commitment from the Government to launch the Moon Shot Project would help do that. When we talk about housing, we talk about being builders not blockers. Maybe we should use the same narrative and energy for this matter. On a related note, while the fight for a new funding model is critical, we cannot afford to overlook the importance of immediate and compassionate support for people who have the condition. In my constituency we are incredibly fortunate to have the House of Hope, a wonderful charity that provides a safe space for women navigating a breast cancer diagnosis and for their families,...
It is an absolute pleasure to serve under your chairship, Mrs Hobhouse. I thank my hon. Friend the Member for Horsham (John Milne) for leading this important debate on Government support for the Lobular Moon Shot Project. On the first anniversary of her death, I want to pay tribute to Dr Susan Michaelis and her tireless campaigning. Today’s debate celebrates a legacy that continues to inspire researchers, clinicians, patients and parliamentarians alike. While the debate is about her story with lobular breast cancer, I would like to focus on what made her Susan. Although Susan was known for her campaigning on lobular breast cancer, she was so much more than that-something her loved ones, who are here today, know all too well. Susan was an Australian who grew up in Melbourne before moving to the UK in 2003. As a child, she had dreams of becoming a pilot, but because of the lack of women in the industry at the time she settled on working in the travel industry instead. However, she soon realised that she really did want to become a pilot, so she set about becoming a qualified commercial pilot. Her dream came true and she trailblazed as the co-pilot on the first all-female crewed flight for the Qantas Group. Susan also obtained a PhD at the University of New South Wales in Sydney in 2010. Her thesis was titled “Health and Flight Safety Implications from Exposure to Contaminated Air in Aircraft”. She was a researcher who devoted her career to improving public health and aviation...
It is a pleasure to serve under your chairmanship today, Mrs Hobhouse. I am grateful to the hon. Member for Horsham (John Milne) for securing today’s debate, and to the Members from across the House who have given their voice to this campaign over a number of years. It is entirely right that Parliament should pause today to consider not just the science, the policy and the funding, but the human reality that sits behind all three of those things. Behind the words “lobular breast cancer” are people who knew something was wrong, but the system could not prove it. That is the point at the heart of today’s debate. This is not a call for special treatment or a demand that we place one cancer above another; it is a recognition that different cancers behave differently, present differently and may require different approaches if we are serious about improving outcomes. Today, we are also remembering Dr Susan Michaelis. Many people in public life are described as courageous, but in Susan’s case that word feels insufficient. She was, as we have heard, a commercial pilot, a researcher, a campaigner, a wife and a woman whose instinct, when faced with injustice or uncertainty, was not to turn away from it but to investigate it. She had already devoted much of her professional life to public safety, particularly in the aviation sector. We have heard about how she challenged assumptions, gathered evidence and pursued truth in an area where the consequences mattered for passengers, crews...
This is not a party-political issue; it is something the shadow Minister and the whole House can agree on. In 2022, the Scottish Government began the process of improving their imaging kits with the introduction of 3D mammography, which is a major step forward. Two months ago, the Scottish Parliament lodged a motion supporting the lobular breast cancer Moon Shot Project and called for the £20 million to be allocated. Does he agree that the breadth of support for this campaign-440 MPs now support it, including myself-is now irresistible, and that the Minister should award the funding?
The hon. Gentleman is right; there is collective support for doing more on this issue. That starts with getting the research right. Without the research, we do not know how to plan for the treatments of the future. I will move on to the other points, but he is also entirely right that this is not a party-political issue, but one that affects all of us and all of our constituents. We have to work with a sense of urgency around it. As we have heard, the lobular breast cancer Moon Shot Project is looking for £20 million over five years to advance the understanding of invasive lobular breast cancer and to support better detection, treatment and surveillance. We cannot dispute that that is a significant sum, but we have to look at it in the context of national health spending and what cancer costs: the cost to families and patients and the cost to the NHS when it is detected late or treated inadequately. We have to bear those factors in mind. We should also be clear about what research funding means in practice. It does not mean a guarantee of easy answers. Science does not work like that, but it does mean giving our best minds the chance to ask the right questions. It means building the evidence base and moving beyond a generic understanding of breast cancer and towards a more precise understanding of this specific disease. That is the direction of travel that we have seen over a number of years in modern healthcare. We have seen it in genomics and targeted therapies and we see...
It is a pleasure to serve under your chairship, Mrs Hobhouse. I thank the hon. Member for Horsham (John Milne) for securing this vital debate. I also thank the hon. Member for Maidstone and Malling (Helen Grant) for campaigning on this topic, following her own diagnosis of lobular breast cancer. I add my tribute to Dr Susan Michaelis, as today marks one year since she passed away from lobular breast cancer. As a founder of the Lobular Moon Shot Project, she campaigned tirelessly on behalf of women diagnosed with lobular breast cancer and raised awareness for the condition. I also pay tribute to members of the Lobular Moon Shot Project, including Susan’s husband, Tristan Loraine, for picking up the mantle, continuing the important work of the project and carrying Susan’s torch forward. I recognise the number of charities that carry out important work in this area, such as Lobular Breast Cancer UK, Breast Cancer Now and Cancer Research UK, and all the right hon. and hon. Members who continue to provide support, many of whom we have heard from today. Lobular breast cancer accounts for 15% of breast cancer cases. However, as we have heard, this form of cancer sadly goes undetected in too many women. We are determined to transform diagnosis and outcomes for patients. Earlier this year, the Minister for Public Health and Prevention, who is the lead DHSC Minister on this issue-I am standing in for her today-and Lord Vallance, the Minister for Science, Innovation, Research and...
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I think my hon. Friend the Member for Bexleyheath and Crayford (Daniel Francis) was first.
I thank the hon. Member for Horsham (John Milne) for securing the debate. I have supported my constituent Emma Hunwick and her campaigning on this issue. It is the third time I have attended a debate on this subject in the two years I have been an MP. I hear what the Minister says about research, but I think what supporters want is assurance that we will not be having a similar conversation again next year. They want confidence that we will have made some progress in the next 12 months.
In a nutshell, what I am trying to lay out is that it is not an either/or question. There is a tremendous amount of work going on to research cancer, including lobular breast cancer, which is a vital subset of that work. The challenge for us is the idea of ringfencing £20 million, because ringfencing is not the standard process. The standard process is to have applications that are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to the public and health and care services, value for money and scientific quality. If there is a difference of view in the Chamber today, it is whether we have an ecosystem of cutting-edge research, applications and competitive process, based on the principles I have just outlined, or a ringfenced fund. I have to be absolutely clear and straight with my hon. Friend that currently the Government are not of the view that a ringfencing approach is the right way to go. The worry is that that approach could potentially cut across the ecosystem-based approach that we are seeking to nurture and foster, which we believe will deliver better outcomes in the end.
Thankfully, the Minister has clarified some of the issues that I was going to ask about. He says the Government are not necessarily looking to ringfence the £20 million, but are waiting for applications for research. The Lobular Moon Shot Project has already put forward some ideas on research. He has said that he stands ready to support the project, so I would just like some more specific detail. He says that we are waiting for applications for research, but does not what the Lobular Moon Shot Project has submitted or talked about fall within that?
As I mentioned earlier, unfortunately I am not the lead Minister on this issue, so I do not have the most up-to-date information on the proposal that has been submitted. If it is okay with the hon. Lady, I will speak with the ministerial colleague, my hon. Friend the Member for Washington and Gateshead South, and write to the hon. Lady on that subject, providing an update on exactly where the proposal is in terms of the overall process that we have. Have I understood her intervention correctly?
indicated assent.
Okay. I thank the hon. Lady. That is what we will do.
I appreciate that the Minister is substituting for another excellent Minister, my hon. Friend the Member for Washington and Gateshead South (Mrs Hodgson); I am sad that she is not here, because she is fantastic. We ringfence money for brain tumour research-I know that that community wants more money, so I am not saying it is the gold standard, but we have made that choice, because we recognised the public concern about brain tumours. There is also public concern about lobular breast cancer and the feeling that people who have it are being left behind. It is fantastic that we have better screening coming on board, but ultimately people need treatment if they are diagnosed during the screening process. The Minister highlighted the fact that there is a competitive bidding process. Is it the case that the bids are not good enough? If that is the case, can we invest money to improve the quality of those bids? As I said earlier, we could bring in better staff, perhaps from overseas, or invest in PhD students to work in this area.
My understanding is that there are bids that are good enough and they are the ones that have attracted funding for research into lobular breast cancer. What I do not know at this moment is precisely where the live bids are and whether they are making the cut in terms of the quality that we are looking for. I will absolutely follow up with my ministerial colleague, and I will write to my hon. Friend on that point.
I think there is a space between the two approaches. As wonderful as the Lobular Moon Shot Project is, I fully respect why the Government say that we cannot allow campaign groups to dictate which universities get x millions of pounds for particular projects, and I see the value of there being a peer-reviewed process through a competitive ecosystem. However, there is a space where we can go beyond a highlight notice, whereby the Government could specifically say, “We want research that will answer these specific sets of research questions.” I wonder whether that is something that he could take back to his colleagues for consideration.
I will absolutely take that suggestion back. I understand my hon. Friend’s point about having a specific call for proposals. I will discuss it with my hon. Friend the Member for Washington and Gateshead South and get back to him. Our approach to funding research is through open and fair competition and peer review to ensure that the highest-quality proposals most likely to deliver real impact for patients are funded without imposing financial targets or limits. We also recognise that international research co-operation is fundamental to driving medical breakthroughs and saving lives. That is why the DHSC participates in and influences the EU cancer mission, which aims to improve the lives of more than 3 million people affected by cancer by 2030 through multi-country research calls and activities. For breast cancer, that includes a focus on driving screening innovation, including the MammoScreen project, supported by UKRI, which is developing safe, non-invasive, microwave-based imaging for more accurate screening. The Government’s national cancer plan for England, published earlier this year, sets out our ambition to improve cancer outcomes and ensure that by 2035, three in four people diagnosed with cancer survive for five years or more. Research, innovation and earlier diagnosis are central to achieving that ambition. We know that too many women with lobular breast cancer face delays in diagnosis because it can be more difficult to detect. That is why the work being...
I thank all hon. Members here present. Some really powerful points have been made. I particularly thank the Minister for his reply-I find it the most revealing reply of all that I have heard over the past year. Considering it is not even strictly his portfolio, I am very impressed. I hope that he or one of his colleagues will agree to follow up, because he has raised some very interesting points. I would like to consult with colleagues and follow up. We are getting an understanding of the processes within Government for making these decisions. From the outside, it is very frustrating. I cannot tell when the Government are stalling or when they are really doing something. I mean that in general; I am not talking about this particular subject. I have had a number of meetings with completely different Departments this week, as it happens, with Ministers. It is very hard to tell when we are just being fobbed off and when we are actually on a path to a solution. I have been in politics only a couple of years; forgive my naivety. I was very interested to hear what the Minister said and I felt he was more honest. I would really appreciate an opportunity to follow up either with him or his colleagues in the coming days. Finally, I must pay tribute again to Dr Susan Michaelis for all her work. This day is of course the one-year anniversary of her death. I also pay tribute to all the lobular ladies, who are campaigning not just for themselves, but for everybody. This is a worldwide...
Sitting adjourned.